CHAMP Participant Organizations
CHAMP brings together the most influential patient advocacy organizations and leaders in the area of migraine, cluster and headache diseases. CHAMP enhances communication, coordination and collaboration to more effectively fight stigma and help people achieve fair access to treatments. Our greatest strength is our members and it is a reflection of how strong people are who live with headache diseases.
PARTICIPANT ORGANIZATIONS
American Migraine Foundation
The American Migraine Foundation provides education, support, and resources for the millions of men, women, and children living with migraine. Its mission is to advance migraine research, promote patient advocacy and expand access to care for patients worldwide. Migraine, and other disabling diseases that cause severe head pain, impact more than 37 million people in the United States. By educating caregivers and giving patients the tools to advocate for themselves, the American Migraine Foundation has cultivated a movement that gives a collective voice to the migraine community.
Association of Migraine Disorders
The Association of Migraine Disorders (AMD) is devoted to expanding the understanding of migraine disease and its true scope. Because migraine is a full body condition with a broad spectrum of symptoms, AMD is focused on including many medical specialties in the management of this disease. The centerpiece of this effort is a comprehensive online course to accelerate the training of more medical professionals. For patients, AMD shares the opinions of experts in its series of short podcasts. AMD also believes that migraine has yet to capture the support of the general public and therefore it hosts Shades for Migraine, a playful, collaborative public awareness campaign. Finally, AMD strives to connect and grow an integrated migraine research community.
Chronic Migraine Awareness Inc.
CMA, Inc. is committed to being the voice of the chronic migraine community. This is accomplished by supporting, educating, and empowering people in their health journey with online peer to peer global support groups, social media campaigns, and in-person events.
Clusterbusters
Clusterbusters is dedicated to raising awareness for cluster headache by partnering with and advising medical professionals and innovators to develop new treatments. It educates medical professionals and the patient community in order to reduce time to diagnosis and increase access to appropriate treatments.
The Cluster Headache Support Group
The Cluster Headache Support Group is dedicated to providing a safe, supportive, community for patients and caregivers affected by cluster headache that offers patient education and access to accurate, relevant information and resources.
Danielle Byron Henry Migraine Foundation
The Foundation was established in memory of beloved daughter and sister, Danielle, who battled migraine disease for 10 years until it ultimately led to her death at the age of 17. Its mission is to increase access to care, especially for young adults and children, by educating primary care providers in the treatment of migraine.
Headache and Migraine Policy Forum (HMPF)
The mission of the Headache and Migraine Policy Forum (HMPF) is to advance public policies and practices that promote accelerated innovation and improved treatments for persons living with headache and migraine disease.
HealthyWomen
HealthyWomen is the nation’s leading independent, nonprofit health information source for women. Its mission is to educate women to make informed health choices for themselves and for their families. For 30+ years, millions of women have turned to HealthyWomen for answers to their most personal health care questions.
Hope for Migraine Community
This online community provides a supportive group for people with migraine who are taking or interested in the CGRP medications (Aimovig, Ajovy, Emgality – Eptinezumab, Ubrogepant, Rimegepant, Atogepant) including evidence-based information about these medications, new research, & shared experience.
Migraine Again
Founded by patients, for patients in 2014, Migraine Again’s website articles, newsletter, videos, podcasts, interviews and resources are produced by people with migraine and medically reviewed by leading headache specialists.
Migraine.com
Migraine.com inspires people living with migraine to embrace their whole selves and engage in relationships with others to build community.
MigraineDisease.org
MigraineDisease.org is an industry leader as the only patient-owned and operated migraine website to have medical review of all content. All content is reviewed for accuracy by a team of board-certified Migraine and Headache specialists.
Migraine World Summit
The Migraine World Summit is the largest virtual patient event in the world for those with chronic headache and migraine disease. Its mission is to reduce the global burden of migraine through world-class education.
Miles for Migraine
Miles for Migraine creates live, patient-participatory events that reduce the burden of isolation and stigma for people with migraine and headache diseases, and their caregivers. It builds community by bringing people together at fun walk/runs and through educational and support programs.
National Headache Foundation
Founded in 1970, the National Headache Foundation is the oldest and largest foundation for patients with headache. Its mission is “To cure headache, and end its pain and suffering.” Its vision is “A World Without Headache.”
Patient Advocate Foundation
Patient Advocate Foundation provides real-time help for patients facing critical illness and debilitating disease as they encounter barriers in their healthcare. Utilizing experience from 20+ years working alongside patients, PAF is well-known for its quality educational materials that help patients self-advocate to overcome common challenges.
The U.S. Pain Foundation
U.S. Pain Foundation is the leading advocacy organization for people with pain. Its mission is to empower, educate, connect, and advocate for individuals living with chronic illness that causes pain, as well as their caregivers and clinicians.
PATIENT OPINION LEADERS & BLOGS
The Daily Headache
The Daily Headache is a blog that candidly addresses the emotional experience of living with migraine and headache disorders and also explores coping strategies, treatments, and research.
Golden Graine
Golden Graine is a blog/brand created by professional patient, Katie M. Golden, to share how she lives a fulfilled life with chronic migraine and pain. Katie found a purpose in writing openly about her experiences in having to navigate an extremely mis-understood and stigmatized chronic illness.
The Migraine Diva
The mission of The Migraine Diva is to help empower and educate people living with headache, migraine disease and mental illness through patient advocacy. Their goal is to share ideas, resources and information on accessible treatments to better the lives of migraine patients and caregivers.
MigrainePal
MigrainePal helps those with migraine get the facts with medically referenced answers. Readers can find practical and evidence-based information to empower themselves.
CHAMP-approved info and materials.
Many new medicines and devices have been approved over the past few years for the treatment of headache, migraine, and cluster diseases. Pharmaceutical companies and device manufacturers are currently offering financial assistance programs to help cover costs and get these new treatments into the hands of patients. The details for each program varies. To help you navigate, CHAMP created Financial Assistance Guides that provide easy-to-understand information, whether you have private or public insurance or are uninsured.
Meet the official CHAMP team.
The Coalition for Headache and Migraine Patients (CHAMP) provides support to people with headache, migraine, and cluster diseases who are often stigmatized and under-served.
Our Sponsors
The generous support from our sponsors helps us continue to fight for all people living with headache, migraine, and cluster discuses. We cannot do this work alone, and our sponsors fuel our impactful work.
For more information on becoming a CHAMP sponsor, please contact CHAMP at info@headachemigraine.org.
Presenting
Novartis
Champion & Advocate
Lilly
Partner & Supporter
Lundbeck
Teva
Biohaven