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COVID-19 Support for those Living with Headache Disease

Resources from CHAMP Participants

As we currently find ourselves amidst an unprecedented global pandemic caused by SARS-CoV-2 (COVID-19), CHAMP wants you to know that our members are here for you. We have compiled a list of resources, information and support that our members have created to help those living with migraine, cluster and other disabling headache diseases. Whether you are searching for answers on how best to manage your disease during this time or simply looking to share your experiences with others, we encourage you to visit the links included below.

Covid-19 virus

Have you experienced a disruption in care or issues accessing your treatments because of COVID-19? Share your story here!

New Pediatric Migraine Resource Center

Developed by the 2019 class of AHS Emerging Leaders, this group of providers audited the population needs and existing content and designed the topics to ensure the pediatric population is well supported.

Managing Migraine During COVID-19

Tailored resources curated from the experts in the headache and migraine field to support those living with migraine during the pandmeic.

A weekly wellness series

Via Facebook Live for the migraine community to provide support during the pandemic. Please tune in to AMF's social channels to see the programming: Facebook, Instagram.

Facebook Live Chat/Support Group

Hosted on Migraine Meanderings - Thursdays at 1pm PT through end of May (may be extended)

ClusterChat Support Group

Sign up for the ClusterChat support group on Zoom with Mr. Bob Wold

How to Get Extra Help with Medications During COVID-19

During the Covid-19 pandemic many individuals need extra help financially. Rx Outreach is a non-profit, fully licensed, mail-order pharmacy.

Resources for Migraine Management

Starting June 13. This program will teach participants coping strategies and methods to manage migraine and the associated stress and anxiety. Guided by Dan Kauffman, PhD, these sessions will be held on a bi-weekly basis and include topics such as relaxation of the mind and body, coping with pain, working with negative emotions and increasing happiness. This virtual program is limited to 30 participants.

Run/Walk/Relax Events

Moved to virtual races through June 30th

Education Days

Moved to virtual free over Zoom through June 30th

Virtual Community Support Groups

Sundays to Thursdays at 7pm ET

Youth Day Camps

Moved to virtual Held via Zoom and Facebook Live

Submit Your Story

NHF invites our community to share stories and photos of how they are coping with the quarantine and the COVID-19 crisis.

Heads UP - Epsiode 52: Treatment Are you experiencing and interruption in your Botox treatment due to COVID-19 restrictions?

Are you wondering what to do if you do not have access to trigger point injections or and infusion center in case your intense migraine last 3 days or more? What if you experience cluster headache during this time? Dr. Lindsay Weitzel discusses with Dr. Vincent Martin some of the tricks of the trade he is using with his patients during this unusual time in history.

Heads UP - Episode 51: COVID-19 and Migraine & Headache Disorders - National Headache Foundation

Dr. Vincent Martin and Dr. Lindsay Weitzel tackle these important questions regarding COVID-19 and migraine & headache disorders:Does the presence of migraine disease make us more prone to coronavirus or other viral illness? Why do we feel so awful when we get sick? Do any of the medications we take put us more at risk? What can we do to limit our exposure yet ensure continuity of our headache/migraine care? How do we combat anxiety etc while we are stuck at home?

The COVID Care Resource Center

An online directory providing an array of resources, FAQs and educational webinars addressing the coronavirus pandemic. This online center will be routinely expanded as important new COVID resources and information becomes available.

COVID Care

Provides patients with direct support in response to their individual needs with expert help from case managers working to resolve issues related to accessing and paying for medical care and cost-of-living needs, including insurance and transportation costs that have become difficult to manage due to the pandemic. COVID Care is available to any patient or caregiver who has a chronic, life-threatening or debilitating illness and who has been directly or indirectly impacted by COVID-19, as well as those who do not have an underlying health condition but have been hospitalized with COVID-19.  The COVID Care team can be reached at 1-800-532-5274, option 0.

The COVID Care Recovery Fund

Delivers $500 in direct financial aid to eligible patients who need non-medical, cost-of-living support as a result of their diagnosis of COVID-19. Patients can access the fund and complete an application for assistance via a secure portal 24/7 or through the toll-free hotline at 1-800-532-5274, option 1.

A new Information Center

Highlighting current facts about COVID-19

A webinar

Stress reduction and coping strategies - a second webinar is in the works on managing pain during COVID-19 (details coming soon!)

A Detailed Analysis

The latest federal policy changes and health care trends related to COVID-19

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