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Headache and Migraine Disease Language and Image Guide

CHAMP Releases Headache and Migraine Disease Language and Image Guide

CHAMP ChatsThe Coalition For Headache And Migraine Patients (CHAMP) recently released the Headache & Migraine Disease Language & Image Guide, a collaborative effort of the headache, migraine and cluster patient advocacy community.

The purpose of the guide is to help all people who communicate about headache diseases to do so in a more accurate, informed and empathetic manner that treats these conditions and the people living with them with the seriousness and care they deserve. We do not intend this guide to be used to shame anyone for the language they use, but rather to educate those unaware of our rights and preferences.

Language and imagery play a vital role in how we understand the world. Too often, language and images used regarding headache diseases disparage and belittle people living with these conditions – labeling them as weak, lazy, helpless or victims. This ultimately creates shame and stigma that illegitimately justifies the notion that people living with headache, migraine or cluster diseases should be ignored or marginalized. This, in turn, affects the resources society makes available to support their pain and disability.

By changing the words and pictures we use for headache diseases, we will begin to change how these conditions are perceived and treated.

We understand that language is constantly evolving, so we plan to periodically update this guide so it reflects the latest preferences of the headache disease community.

I thank you in advance for working with us to change the perception of headache diseases. Please send me any feedback or questions about the guide.

-Meghan Buzby
Advocacy Director, CHAMP

Download the Full Guide (PDF 6.7mb)

Download the 2-page Guide Highlights (PDF 1mb)

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