Who We Are & What We Do
The Coalition for Headache & Migraine Patients (CHAMP) brings together the most influential patient advocacy organizations and leaders in the area of headache disease. Through joint efforts and collaboration, the coalition leads:
- public awareness efforts, such as Migraine & Headache Awareness Month
- think-tank meetings, such as Elevate
- patient-centered events, such as Retreat Migraine
- provider education with Head Ed
The Coalition’s greatest strength is our 20+ coalition participants. They show the strength of people who live with headache disease. Meet our Coalition participants:
The AHDA gives voices to the millions of Americans who are living with headache disorders. It has been the leading voice in federal headache advocacy. Whether fighting against discriminatory practices, policies, or laws; drafting legislation; or making comments to regulatory agencies, the AHDA is at the forefront.
AMD expands the understanding of migraine disease and its true scope. It includes many medical specialties in the management of this disease. The centerpiece of this effort is a comprehensive online course to accelerate the training of more medical professionals. For patients, AMD shares the opinions of experts in its series of short podcasts. The organization believes that migraine has yet to capture the support of the public; therefore, it hosts Shades for Migraine, a collaborative public awareness campaign.
Chronic Migraine Awareness is the voice of the chronic migraine community. It supports, educates and empowers people in their health journey. CMA hosts online peer-to-peer global support groups, social media campaigns and in-person events.
Clusterbusters raises awareness for cluster headache by partnering with and advising medical professionals and innovators to develop new treatments. It educates medical professionals and the patient community in order to reduce time to diagnosis and increase access to appropriate treatments.
The FPA is the largest patient organization supporting all people affected by neuropathic facial pain, leading the world in resources for information and healthcare guidance. Through programs of education, personal support, and advocacy efforts, FPA supports patients, their loved ones and caregivers, and healthcare professionals who diagnose and treat people affected by facial pain.
The Headache and Migraine Policy Forum advances public policies and practices that promote accelerated innovation and improved treatments for persons living with headache and migraine disease.
Migraine Meanderings provides patient-oriented resources, encouragement, support and education for people who live with migraine, raises public awareness about migraine disease, and seeks to empower patient voices.
Founded in 2014 by patients and for patients. Migraine Again offers a collection of website articles, newsletters, videos, podcasts, interviews and resources. All content is produced by people with migraine and medically reviewed by leading headache specialists.
The mission of The MigraineNation Foundation is to improve the lives of people with migraine by decreasing the frequency and severity of their migraine experience through outreach, education, and research.
Migraine World Summit is the largest virtual patient event in the world for those with chronic headache and migraine disease. Its mission is to reduce the global burden of migraine through world-class education.
Miles for Migraine offers free programs and services to the migraine and headache disease community. Through our in-person and virtual events, we help you advocate, educate and socialize to optimize your wellbeing.
The National Headache Foundation (NHF) provides information and resources for patients, caregivers, loved ones, and primary care providers on headache disorders and migraine disease. We also offer a directory of healthcare providers who specialize in headache treatment. In addition, the NHF advocates for policies that support headache patients’ needs in collaboration with HMPF and AHDA.
Patient Advocate Foundation helps patients facing critical illness and debilitating disease as they encounter barriers in their healthcare. Utilizing experience from 20+ years working alongside patients, PAF provides educational materials that help patients self-advocate to overcome common challenges.
U.S. Pain Foundation is the leading advocacy organization for people with pain. Its mission is to empower, educate, connect, and advocate for individuals living with chronic illness that causes pain, as well as their caregivers and clinicians.
Our Patient Opinion Leaders
Anna Williams has become an avid patient advocate after her long medical journey ending in the diagnosis of migraine, cluster headache, SUNCT and trigeminal neuralgia. She enjoys raising awareness to patients and professionals alike by connecting them to resources. She believes, “Every story matters and needs to be heard.”
The Daily Headache is a blog that candidly addresses the emotional experience of living with migraine and headache disorders. It explores coping strategies, treatments and research.
Darcy Bonjour is a patient advocate for people with migraine and headache disorders as well as other chronic illnesses. It was life changing for her when she had to stop working because of chronic illness. Determined to find a way to help and encourage others she became involved in patient advocacy. She currently volunteers for several organizations and also enjoys working in social media in chronic pain groups.
Through patient advocacy, the Migraine Diva’s mission is to help empower and educate people living with headache, migraine disease and mental illness. Their goal is to share ideas, resources and information about accessible treatments to improve the lives of migraine patients and caregivers.
MigrainePal helps those with migraine get the facts with medically referenced answers. Readers can find practical and evidence-based information to empower themselves.
Tammy Rome is the founder of Cluster Headache Support Group and a Licensed Professional Counselor, clinical supervisor, and Clinical Director of Telespera Counseling. She specializes in treating chronic pain and medical trauma, with a special emphasis on migraine and headache disorders.
NDPHaware is a new organization sharing information and organizing advocates around New Daily Persistent Headache (NDPH). The primary objective of NDPHaware is to find and promote treatments that will help people to effectively manage their condition.
Community Impact Partners
Once upon a time, there were two patients who were tired of healthcare innovators designing products and services without talking to patients first. They dreamed of restoring power back to patients, giving them a voice and fairly valuing their insights. That dream is Savvy Cooperative.
Women have unique health needs, and many diseases and conditions affect women differently than men. The Society for Women’s Health Research is the thought leader in advancing women’s health through science, policy, and education while promoting research on sex differences to optimize women’s health.
As a patient-first national nonprofit, the Support Fibromyalgia Network passionately empowers our community through education and inspiration. Created and led by patients, our mission is to bridge meaningful connections among individuals living with fibromyalgia, healthcare professionals, and researchers.
OPIS is a non-profit think-and-do tank promoting a shift in global decision-making priorities toward the prevention and alleviation of the intense suffering of all sentient beings. It develops and communicates guiding principles for compassionate governance and systemic change. It promotes effective, evidence-based solutions to specific causes of suffering.
The Patient Access Network Foundation is dedicated to accelerating access to treatment for those who need it most and empowering patients on their healthcare journeys. It provides critical financial assistance for treatment costs, advocate for policy solutions that expand access to care, and deliver education on complex topics.
HealthyWomen is dedicated to educating women in the middle — ages 35 to 64 — so they can make informed health decisions, advocate for themselves and prioritize their health and wellness. It works collaboratively with partner organizations and alliances to reach more women.
The ACPA's mission is to facilitate peer support, education, hope, and motivation for individuals living with pain and those treating pain conditions. It strives to raise awareness among the health care community, policymakers, and the public at large about issues of living with physical and emotional pain. Its vision is to motivate those with pain conditions to seek quality care, to optimize healthcare office visits, and to prevent chronic disease.
The Cyclic Vomiting Syndrome Association is a nonprofit organization dedicated to supporting individuals and families affected by cyclic vomiting syndrome, abdominal migraine, and related disorders. Through education, awareness, advocacy, support programs, and research funding, CVSA helps patients, caregivers, and healthcare professionals better understand CVS and navigate the challenges of living with the condition.
Thank you to the generous sponsors that make our work possible
