Declaration of Rights

for People With Headache Diseases

We, the people with headache, migraine and cluster disease, deserve respect and empathy for the serious and sometimes debilitating medical conditions with which we live.

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Learn more about our coalition

Find out more about the amazing organizations and partners that make up CHAMP.

EXPLORE MORE RESOURCES

There are 3 ways you can help.

Not sure how to contribute to the cause? Find out ways to volunteer your time or make a donation to fight this disease.

VOLUNTEER YOUR TIME

MAKE A DONATION

BECOME AN ADVOCATE

DiHAC

Disparities in Headache Advisory Council

DiHAC is a cross-functional group of patient advocacy organization leaders, headache patients and healthcare providers working to radically change outcomes for people of color in our healthcare system. 

LEARN MORE ABOUT DiHAC 

RetreatMigraine

RetreatMigraine is a conference specially designed by and for people living with migraine disease.

The goal is to support and strengthen our community from the inside out. Interactive sessions provide disease and treatment education, advocacy training and complementary therapy experiences.

LEARN MORE ABOUT RETREATMIGRAINE

MHAM

National Migraine & Headache Awareness Month takes place every June. The Coalition comes together to send a unified message about headache and migraine diseases. Join us in spreading awareness and education through various campaigns and initiatives. 

JOIN THE CAUSE HERE 

Migraine at Work

Working to give employers and employees the tools they need to create healthier, stigma-free and more productive workplaces for those living with migraine disease. 

MIGRAINE AT WORK HAS THE RESOURCES YOU NEED

The Coalition

CHAMP brings together the most influential patient advocacy organizations and leaders in the area of migraine, cluster and headache diseases. CHAMP enhances communication, coordination, and collaboration to more effectively fight stigma and help people achieve fair access to treatments. Our greatest strength is our coalition participants. They show the strength of people who live with headache diseases.

PARTICIPANT GROUPS

American Migraine Foundation

The American Migraine Foundation provides education, support and resources for the millions of men, women and children living with migraine. Its mission is to advance migraine research, promote patient advocacy and expand access to care for patients worldwide. Migraine, and other disabling diseases that cause severe head pain, impact more than 37 million people in the United States. By educating caregivers and giving patients the tools to advocate for themselves, the American Migraine Foundation has cultivated a movement that gives a collective voice to the migraine community.

Association of Migraine Disorders

The Association of Migraine Disorders expands the understanding of migraine disease and its true scope. It includes many medical specialties in the management of this disease. The centerpiece of this effort is a comprehensive online course to accelerate the training of more medical professionals. For patients, AMD shares the opinions of experts in its series of short podcasts. The organization believes that migraine has yet to capture the support of the public; therefore, it hosts Shades for Migraine, a playful, collaborative public awareness campaign. AMD strives to connect and grow an integrated migraine research community.

Chronic Migraine Awareness Inc.

Chronic Migraine Awareness is the voice of the chronic migraine community. It supports, educates and empowers people in their health journey. CMA hosts online peer-to-peer global support groups, social media campaigns and in-person events.

Clusterbusters

Clusterbusters raises awareness for cluster headache by partnering with and advising medical professionals and innovators to develop new treatments. It educates medical professionals and the patient community in order to reduce time to diagnosis and increase access to appropriate treatments.

The Cluster Headache Support Group

Cluster Headache Support Group provides a safe, supportive, community for patients and caregivers affected by cluster headache. It offers patient education and access to accurate, relevant information and resources.

Danielle Byron Henry Migraine Foundation

The Foundation was established in memory of beloved daughter and sister, Danielle, who battled migraine disease for 10 years. It ultimately led to her death at the age of 17. Its mission is to increase access to care, especially for young adults and children, by educating primary care providers in the treatment of migraine.

Headache and Migraine Policy Forum (HMPF)

The Headache and Migraine Policy Forum advances public policies and practices that promote accelerated innovation and improved treatments for persons living with headache and migraine disease.

HealthyWomen

HealthyWomen is the nation’s leading independent, nonprofit health information source for women. Its mission is to educate women to make informed health choices for themselves and for their families. For 30+ years, millions of women have turned to HealthyWomen for answers to their most personal health care questions.

Hope for Migraine Community

This online community is a supportive group for people with migraine who are taking or interested in CGRP medications (Aimovig, Ajovy, Emgality — Eptinezumab, Ubrogepant, Rimegepant, Atogepant). The group shares evidence-based information about the medications, new research and shared experience.

Migraine Again

Founded in 2014 by patients and for patients. Migraine Again offers a collection of website articles, newsletters, videos, podcasts, interviews and resources. All content is produced by people with migraine and medically reviewed by leading headache specialists.

 

 

 

 

Migraine.com

The Migraine.com website inspires people living with migraine to embrace their whole selves and engage in relationships with others in order to build community.

MigraineDisease.org

The MigraineDisease.org website is the only patient owned and operated migraine website that medically reviews all content. A team of board-certified migraine and headache specialists review content for accuracy.

Migraine World Summit

Migraine World Summit is the largest virtual patient event in the world for those with chronic headache and migraine disease. Its mission is to reduce the global burden of migraine through world-class education.

Miles for Migraine

Miles for Migraine reduces the burden of isolation and stigma for people with migraine disease, headache disease and their caregivers. It creates community at fun walk/run events, educational programs and support groups.

National Headache Foundation

Founded in 1970, the National Headache Foundation is the oldest and largest foundation for patients with headache. Its mission is “To cure headache, and end its pain and suffering.” Its vision is “A World Without Headache.”

Patient Advocate Foundation

Patient Advocate Foundation helps patients facing critical illness and debilitating disease as they encounter barriers in their healthcare. Utilizing experience from 20+ years working alongside patients, PAF provides educational materials that help patients self-advocate to overcome common challenges.

The U.S. Pain Foundation

U.S. Pain Foundation is the leading advocacy organization for people with pain. Its mission is to empower, educate, connect, and advocate for individuals living with chronic illness that causes pain, as well as their caregivers and clinicians.

PATIENT OPINION LEADERS

The Daily Headache

The Daily Headache is a blog that candidly addresses the emotional experience of living with migraine and headache disorders. It explores coping strategies, treatments and research.

Golden Graine

Golden Graine is a blog and brand created by professional patient, Katie M. Golden. She shares how she lives a fulfilled life with chronic migraine and pain. Katie found a purpose in writing openly about her experiences of navigating an extremely misunderstood and stigmatized chronic illness.

The Migraine Diva

Through patient advocacy, the Migraine Diva’s mission is to help empower and educate people living with headache, migraine disease and mental illness. Their goal is to share ideas, resources and information about accessible treatments to improve the lives of migraine patients and caregivers.

MigrainePal

MigrainePal helps those with migraine get the facts with medically referenced answers. Readers can find practical and evidence-based information to empower themselves.

More community resources

There are many amazing groups and opinion leaders in the migraine, cluster, and headache community. 

LEARN MORE HERE 

Download the Coalition Guide

Read more about each of the participants that make up the CHAMP coalition and learn more about coalition programs. 

SEE THE GUIDE HERE 

Calendar of Events

april, 2021

If you have an event you would like featured,
send an email to info@headachemigraine.org with details.

Join the CHAMP community