COMMUNITY

Our Coalition Participants

CHAMP brings together the most influential patient advocacy organizations and leaders in the area of migraine, cluster and headache diseases. CHAMP enhances communication, coordination, and collaboration to more effectively fight stigma and help people achieve fair access to treatments. Our greatest strength is our coalition participants. They show the strength of people who live with headache diseases.

Alliance for Headache Disorders Advocacy

The AHDA gives voices to the millions of Americans who are living with headache disorders. It has been the leading voice in federal headache advocacy. Whether fighting against discriminatory practices, policies, or laws; drafting legislation; or making comments to regulatory agencies, the AHDA is at the forefront.

Association of Migraine Disorders

AMD expands the understanding of migraine disease and its true scope. It includes many medical specialties in the management of this disease. The centerpiece of this effort is a comprehensive online course to accelerate the training of more medical professionals. For patients, AMD shares the opinions of experts in its series of short podcasts. The organization believes that migraine has yet to capture the support of the public; therefore, it hosts Shades for Migraine, a collaborative public awareness campaign.

Chronic Migraine Awareness Inc.

Chronic Migraine Awareness is the voice of the chronic migraine community. It supports, educates and empowers people in their health journey. CMA hosts online peer-to-peer global support groups, social media campaigns and in-person events.

Clusterbusters

Clusterbusters raises awareness for cluster headache by partnering with and advising medical professionals and innovators to develop new treatments. It educates medical professionals and the patient community in order to reduce time to diagnosis and increase access to appropriate treatments.

The Cluster Headache Support Group

Cluster Headache Support Group provides a safe, supportive, community for patients and caregivers affected by cluster headache. It offers patient education and access to accurate, relevant information and resources.

Danielle Byron Henry Migraine Foundation

The Foundation was established in memory of beloved daughter and sister, Danielle, who battled migraine disease for 10 years. It ultimately led to her death at the age of 17. Its mission is to increase access to care, especially for young adults and children, by educating primary care providers in the treatment of migraine.

Headache and Migraine Policy Forum

The Headache and Migraine Policy Forum advances public policies and practices that promote accelerated innovation and improved treatments for persons living with headache and migraine disease.

Migraine Meanderings

Migraine Meanderings provides patient-oriented resources, encouragement, support and education for people who live with migraine, raises public awareness about migraine disease, and seeks to empower patient voices.

Migraine Again

Founded in 2014 by patients and for patients. Migraine Again offers a collection of website articles, newsletters, videos, podcasts, interviews and resources. All content is produced by people with migraine and medically reviewed by leading headache specialists.

MigraineDisease.org

The MigraineDisease.org website is the only patient owned and operated migraine website that medically reviews all content. A team of board-certified migraine and headache specialists review content for accuracy.

MigraineNation

The mission of The MigraineNation Foundation is to improve the lives of people with migraine by decreasing the frequency and severity of their migraine experience through outreach, education, and research.

Migraine World Summit

Migraine World Summit is the largest virtual patient event in the world for those with chronic headache and migraine disease. Its mission is to reduce the global burden of migraine through world-class education.

Miles for Migraine

Miles for Migraine offers free programs and services to the migraine and headache disease community. Through our in-person and virtual events, we help you advocate, educate and socialize to optimize your wellbeing.

NDPHaware

NDPHaware is a new organization sharing information and organizing advocates around New Daily Persistent Headache (NDPH). The primary objective of NDPHaware is to find and promote treatments that will help people to effectively manage their condition.

National Headache Foundation logo

National Headache Foundation

The National Headache Foundation (NHF) provides information and resources for patients, caregivers, loved ones, and primary care providers on headache disorders and migraine disease. We also offer a directory of healthcare providers who specialize in headache treatment. In addition, the NHF advocates for policies that support headache patients’ needs in collaboration with HMPF and AHDA.

Patient Advocate Foundation

Patient Advocate Foundation helps patients facing critical illness and debilitating disease as they encounter barriers in their healthcare. Utilizing experience from 20+ years working alongside patients, PAF provides educational materials that help patients self-advocate to overcome common challenges.

U.S. Pain Foundation

U.S. Pain Foundation is the leading advocacy organization for people with pain. Its mission is to empower, educate, connect, and advocate for individuals living with chronic illness that causes pain, as well as their caregivers and clinicians.

Our Patient Opinion Leaders

Parenting with Migraine

Parenting With Migraine is a brand and blog created by Marina Medved-Lentini, sharing her parenting journey with chronic Migraine. Parenting With Migraine supports people with Migraine, especially parents, through education and empowerment.

Anna Williams

Anna has become an avid patient advocate after her long medical journey ending in the diagnosis of migraine, cluster headache, SUNCT and trigeminal neuralgia. She enjoys raising awareness to patients and professionals alike by connecting them to resources. She believes, “Every story matters and needs to be heard.”

The Daily Headache

The Daily Headache is a blog that candidly addresses the emotional experience of living with migraine and headache disorders. It explores coping strategies, treatments and research.

Golden Graine

Golden Graine is a blog and brand created by professional patient, Katie M. Golden. She shares how she lives a fulfilled life with chronic migraine and pain. Katie found a purpose in writing openly about her experiences of navigating an extremely misunderstood and stigmatized chronic illness.

The Migraine Diva

Through patient advocacy, the Migraine Diva’s mission is to help empower and educate people living with headache, migraine disease and mental illness. Their goal is to share ideas, resources and information about accessible treatments to improve the lives of migraine patients and caregivers.

MigrainePal

MigrainePal helps those with migraine get the facts with medically referenced answers. Readers can find practical and evidence-based information to empower themselves.

3 Ways You Can Help

Not sure how to contribute to the cause? Find out how to advocate, ways to volunteer your time or make a donation to fight headache diseases.

BECOME AN ADVOCATE

VOLUNTEER YOUR TIME

MAKE A DONATION

More community resources

There are many amazing groups and opinion leaders in the migraine, cluster and headache community. 

LEARN MORE HERE 

Thank you to the generous sponsors that make our work possible

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