Declaration of Rights
for People With Headache Diseases
We, the people with headache, migraine and cluster disease, deserve respect and empathy for the serious and sometimes debilitating medical conditions with which we live.
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Learn more about our coalition
Find out more about the amazing organizations and partners that make up CHAMP.
Coalition Programs
The amazing oragnizations that make up the CHAMP coalition have a multitude of resources to make the world a better place for people living with headache disease.
There are 3 ways you can help.
Not sure how to contribute to the cause? Find out how to advocate, ways to volunteer your time or make a donation to fight headache diseases.
DiHAC
Disparities in Headache Advisory Council
DiHAC is a cross-functional group of patient advocacy organization leaders, headache patients and healthcare providers working to radically change outcomes for people of color in our healthcare system.
RetreatMigraine
RetreatMigraine is a conference specially designed by and for people living with migraine disease.
The goal is to support and strengthen our community from the inside out. Interactive sessions provide disease and treatment education, advocacy training and complementary therapy experiences.
MHAM
National Migraine & Headache Awareness Month takes place every June. The CHAMP Coalition comes together to send a unified message about headache and migraine diseases. Join us in spreading awareness and education through various campaigns and initiatives.
Migraine at Work
Working to give employers and employees the tools they need to create healthier, stigma-free and more productive workplaces for those living with migraine disease.
Migraine at School
Are you concerned your child might have a headache disease? Learn about migraine symptoms, cluster and headache diseases in children, how to spot them, and other tips to help you and your child.
The Coalition
CHAMP brings together the most influential patient advocacy organizations and leaders in the area of migraine, cluster and headache diseases. CHAMP enhances communication, coordination, and collaboration to more effectively fight stigma and help people achieve fair access to treatments. Our greatest strength is our coalition participants. They show the strength of people who live with headache diseases.
PARTICIPANT GROUPS
Association of Migraine Disorders
The Association of Migraine Disorders expands the understanding of migraine disease and its true scope. It includes many medical specialties in the management of this disease. The centerpiece of this effort is a comprehensive online course to accelerate the training of more medical professionals. For patients, AMD shares the opinions of experts in its series of short podcasts. The organization believes that migraine has yet to capture the support of the public; therefore, it hosts Shades for Migraine, a playful, collaborative public awareness campaign. AMD strives to connect and grow an integrated migraine research community.
Chronic Migraine Awareness Inc.
Chronic Migraine Awareness is the voice of the chronic migraine community. It supports, educates and empowers people in their health journey. CMA hosts online peer-to-peer global support groups, social media campaigns and in-person events.
Clusterbusters
Clusterbusters raises awareness for cluster headache by partnering with and advising medical professionals and innovators to develop new treatments. It educates medical professionals and the patient community in order to reduce time to diagnosis and increase access to appropriate treatments.
The Cluster Headache Support Group
Cluster Headache Support Group provides a safe, supportive, community for patients and caregivers affected by cluster headache. It offers patient education and access to accurate, relevant information and resources.
Danielle Byron Henry Migraine Foundation
The Foundation was established in memory of beloved daughter and sister, Danielle, who battled migraine disease for 10 years. It ultimately led to her death at the age of 17. Its mission is to increase access to care, especially for young adults and children, by educating primary care providers in the treatment of migraine.
Headache and Migraine Policy Forum (HMPF)
The Headache and Migraine Policy Forum advances public policies and practices that promote accelerated innovation and improved treatments for persons living with headache and migraine disease.
Hope for Migraine
This online community is a support and information group for people with migraine who are taking or interested in the new classes of medications and medical devices. This group provides an opportunity to talk about real world treatment experience, shares evidence-based information, provides resources about access, insurance and clinical trials, and posts updates about treatment options in the clinical pipeline.
Migraine Again
Founded in 2014 by patients and for patients. Migraine Again offers a collection of website articles, newsletters, videos, podcasts, interviews and resources. All content is produced by people with migraine and medically reviewed by leading headache specialists.
MigraineDisease.org
The MigraineDisease.org website is the only patient owned and operated migraine website that medically reviews all content. A team of board-certified migraine and headache specialists review content for accuracy.
MigraineNation
The mission of The MigraineNation Foundation is to improve the lives of people with migraine by decreasing the frequency and severity of their migraine experience through outreach, education, and research.
Migraine World Summit
Migraine World Summit is the largest virtual patient event in the world for those with chronic headache and migraine disease. Its mission is to reduce the global burden of migraine through world-class education.
Miles for Migraine
Miles for Migraine reduces the burden of isolation and stigma for people with migraine disease, headache disease and their caregivers. It creates community at fun walk/run events, educational programs and support groups.
NDPHaware
NDPHaware is a new organization sharing information and organizing advocates around New Daily Persistent Headache (NDPH). The primary objective of NDPHaware is to find and promote treatments that will help people to effectively manage their condition.
Patient Advocate Foundation
Patient Advocate Foundation helps patients facing critical illness and debilitating disease as they encounter barriers in their healthcare. Utilizing experience from 20+ years working alongside patients, PAF provides educational materials that help patients self-advocate to overcome common challenges.
U.S. Pain Foundation
U.S. Pain Foundation is the leading advocacy organization for people with pain. Its mission is to empower, educate, connect, and advocate for individuals living with chronic illness that causes pain, as well as their caregivers and clinicians.
PATIENT OPINION LEADERS
Parenting with Migraine
Parenting With Migraine is a brand and blog created by Marina Medved-Lentini, sharing her parenting journey with chronic Migraine. Parenting With Migraine supports people with Migraine, especially parents, through education and empowerment.
Anna Williams
Anna has become an avid patient advocate after her long medical journey ending in the diagnosis of migraine, cluster headache, SUNCT and trigeminal neuralgia. She enjoys raising awareness to patients and professionals alike by connecting them to resources. She believes, “Every story matters and needs to be heard.”
The Daily Headache
The Daily Headache is a blog that candidly addresses the emotional experience of living with migraine and headache disorders. It explores coping strategies, treatments and research.
Golden Graine
Golden Graine is a blog and brand created by professional patient, Katie M. Golden. She shares how she lives a fulfilled life with chronic migraine and pain. Katie found a purpose in writing openly about her experiences of navigating an extremely misunderstood and stigmatized chronic illness.
The Migraine Diva
Through patient advocacy, the Migraine Diva’s mission is to help empower and educate people living with headache, migraine disease and mental illness. Their goal is to share ideas, resources and information about accessible treatments to improve the lives of migraine patients and caregivers.
MigrainePal
MigrainePal helps those with migraine get the facts with medically referenced answers. Readers can find practical and evidence-based information to empower themselves.
More community resources
There are many amazing groups and opinion leaders in the migraine, cluster, and headache community.
Download the Coalition Guide
Read more about each of the participants that make up the CHAMP coalition and learn more about coalition programs.
