14jun10:00 AM4:30 PMMigraine Patient Access for CGRP - ICER Final Vote
Patient advocates and CHAMP – Coalition For Headache And Migraine Patients members Jill Oglesby Dehlin, Mary Franklin,
Patient advocates and CHAMP – Coalition For Headache And Migraine Patients members Jill Oglesby Dehlin, Mary Franklin, Lynn Kaufman, Shirley Steinman Kessel, Katie M. Golden and Kevin Lenaburg will be testifying or participating in a round table during the last phase of ICER’s review of CGRP inhibitors. The migraine community had a record 210 patients send in their stories to ICER about why access to these groundbreaking medicines is so vital to our daily life. If you can’t be in LA to join in person, please use the link below to register and choose the “Online” option.
(Thursday) 10:00 AM - 4:30 PM
CHAMP is following the Covid guidelines in Hennepin County, MN. Our team strongly encourages attendees to be vaccinated and boosted. We also encourage wearing a mask inside the hotel. We request attendees take a Covid test 24 hours prior to attending the event. During the event, hand sanitizer is available in the highly-trafficked areas. Additionally, each attendee can wear a color-coded lanyard that indicates their proximity comfort (i.e. let’s hug; let’s elbow bump; or let’s wave from 6 feet). For everyone’s safety, health and wellbeing: If you do not feel well — for any unusual reason — we ask that you stay home from RetreatMigraine.
CHAMP has multiple resources to guide you along the map of your patient journey. From our Language and Image Guide to our Financial Assistance Guides we are here to help.
We will do a random drawing of names and make a list of everyone in the order they were drawn.
Those drawn first will be offered a spot at RetreatMigraine 2022 via email in the first week of January. The email will include:
People who do not receive spots will be placed on a waitlist in the order their name was drawn. They will receive:
If people do not claim spots or cancel, we will move down the waitlist.
If people miss the lottery, they can be added to the waitlist after the lottery closes, but they will be added to the end of the waitlist.
Many new medicines and devices have been approved over the past few years for the treatment of headache, migraine, and cluster diseases. Pharmaceutical companies and device manufacturers are currently offering financial assistance programs to help cover costs and get these new treatments into the hands of patients. The details for each program varies. To help you navigate, CHAMP created Financial Assistance Guides that provide easy-to-understand information, whether you have private or public insurance or are uninsured.
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