Learn About Policy Partners

If any of these statements below make you angry (and they should), you can take action. Many opportunities exist to raise your voice to Congress and policymakers alike.

Lack of Funding

Headache, migraine and cluster diseases get minimal federal funding for research.

Lack of Accommodations

People living with these diseases often experience lack of accommodations in the workplace or in the classroom.

Job Loss

Many are forced to quit their jobs or simply lose their jobs due to their often disabling disease.

Difficult Disability Claims

Applying for disability is rarely an easy, seamless process.

Lack of Support

Family, friends and coworkers of those living with headache, migraine and cluster diseases do not fully understand or empathize

US Capital Building

Sign Up to Become a CHAMPion Advocate

Join our community network of patients, caregivers, patient advocates, healthcare professionals and anyone interested in staying abreast of the issues that could impact the quality of life of those living with headache, migraine and cluster diseases.

Member Organizations Making a Difference

CHAMP also partners with and promotes the opportunities provided by our members and stakeholders.

  • US Pain Foundation

    US Pain Foundation

    Offers individuals living with chronic pain various ways to join its advocacy network and take action on a broad range of issues. Understanding your time and energy are limited, you can write op-eds or letters to the editor, share your personal story with policymakers via emails, calls or in-person meetings, or even testify at the state and federal level. US Pain follows federal and state legislation related to treatment access, quality of life, patient safety and more. It also empowers advocates with training sessions, webinars and an advocacy toolkit.

Dig deeper into healthcare policies and practices with Headache & Migraine Policy Forum (HMPF) and gain experience in face-to-face lobbying with Alliance for Headache Disorders Advocacy (AHDA)’s Headache on the Hill.

  • The Headache and Migraine Policy Forum

    Headache & Migraine Policy Forum

    HMPF advances public policies that promote accelerated innovation and improved treatments for those living with headache and migraine diseases. HMPF leads the community in providing opportunities for state advocacy on issues such as step therapy, prior authorization, non-medical switching and other barriers to treatment as well as provides unique educational resources including white papers, infographics, videos, and Capitol Hill briefings on topics important to persons living with migraine disease.

    All of HMPF’s excellent infographics, videos, and policy papers can be found by clicking here. Plus be sure to check out this podcast from CHAMP’s own Jaime Sanders from the Migraine Diva.The Patient Access Podcast is brought to you by the Alliance for Patient Access, the parent organization of HMPF.

  • Headache On The Hill

    Headache On The Hill

    Each February, the Alliance for Headache Disorders Advocacy holds its annual Headache on the Hill lobby day in DC. The event brings over 100 healthcare providers, headache disease advocates and patients to Capitol Hill to meet with their Congressional representatives to ask for support of federal legislation that would better the lives of those living with headache diseases. Headache on the Hill has grown considerably over the years.

  • Headache & Migraine Disease Working Group

    Headache & Migraine Disease Working Group

    The Alliance for Patient Access, a national network of healthcare providers working to ensure that patients have access to approved therapies and appropriate care, recently launched the Headache & Migraine Disease Working Group. This new working group brings together a unique network of clinicians interested in public policy as it relates to access to therapies used to treat headache and migraine disease. It works to ensure that clinician and patient voices are heard by policymakers by explaining how access barriers impact patient care. Working group members may be asked to provide comments or testimony on legislative or policy matters at both the state and federal levels, collaborate on drafting white papers, infographics and other educational materials, or engage with the media.

    If you are a healthcare provider and would like to learn more or become a member of AfPA’s Headache & Migraine Working Group, please contact Josie Peterson at jpeterson@allianceforpatientaccess.org.