Speak up for people living with headache disease. The Headache Disease Policy Advocacy Network, or HDPAN, was formed in early 2021 launching a four-year strategic plan that would guide advocacy toward real and strategic gains.
See organizations below that welcome new advocates.
CHAMP partners with and promotes healthcare policy and advocacy opportunities. Learn healthcare policies and practices, gain experience in face-to-face lobbying, and hone your advocacy skills.
US Pain Foundation
US Pain offers individuals living with chronic pain various ways to join its advocacy network and take action on a broad range of issues. Write op-eds or letters to the editor. Share your personal story with policymakers via emails, calls, or in-person meetings. Testify at the state and federal level. US Pain follows federal and state legislation related to treatment access, quality of life, patient safety, and more. It empowers advocates with training sessions, webinars, and an advocacy toolkit.
Headache & Migraine Policy Forum
HMPF advances public policies that promote accelerated innovation and improved treatments for those living with headache and migraine diseases. HMPF provides opportunities for state advocacy on issues such as step therapy, prior authorization, non-medical switching, and other barriers to treatment. It provides unique educational resources including white papers, infographics, videos, and Capitol Hill briefings.
Additional Policy Organizations
Headache on the Hill
Headache on the Hill is an annual advocacy event in Washington, D.C. organized by the Alliance for Headache Disorders Advocacy (AHDA). AHDA unites health professionals, migraine and cluster headache advocates, and patients to present requests of Congress. These asks are focused on improving awareness about the impact of headache diseases and the need for research funding.
The 50-State Network (Global Healthy Living Foundation)
This is a grassroots advocacy organization that is made up of patients. They work to share patient perspective, which is crucial in the State and Federal health and policy and regulatory arenas. Their focus is on repurposing the energy of frustration, despair and helplessness into positive mobilization, action, and fair representation.
Headache & Migraine Disease Working Group
The Alliance for Patient Access launched the Headache & Migraine Disease Working Group. This group brings together a network of clinicians interested in public policy as it relates to access to therapies used to treat headache and migraine disease. It ensures that clinician and patient voices are heard by policymakers by explaining how access barriers impact patient care. Working group members provide comments or testimony on legislative or policy matters at both the state and federal levels, collaborate on drafting white papers, infographics and other educational materials, or engage with the media.
If you are a healthcare provider and would like to learn more or become a member of AfPA’s Headache & Migraine Working Group, contact Josie Peterson at email@example.com.