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US Pain Foundation
Offers individuals living with chronic pain various ways to join its advocacy network and take action on a broad range of issues. Understanding your time and energy are limited, you can write op-eds or letters to the editor, share your personal story with policymakers via emails, calls, or in-person meetings, or even testify at the state and federal level. US Pain follows federal and state legislation related to treatment access, quality of life, patient safety, and more. It also empowers advocates with training sessions, webinars, and an advocacy toolkit.
Headache & Migraine Policy Forum
HMPF advances public policies that promote accelerated innovation and improved treatments for those living with headache and migraine diseases. HMPF leads the community in providing opportunities for state advocacy on issues such as step therapy, prior authorization, non-medical switching and other barriers to treatment as well as provides unique educational resources including white papers, infographics, videos, and Capitol Hill briefings on topics important to persons living with migraine disease.
All of HMPF’s excellent infographics, videos, and policy papers can be found by clicking here. The Patient Access Podcast is brought to you by the Alliance for Patient Access, the parent organization of HMPF.
Additional Policy Organizations
Headache on the Hill (HOH)
Headache on the Hill (HOH) is an annual advocacy event in Washington DC organized by the Alliance for Headache Disorders Advocacy (AHDA).The AHDA unites health professionals, migraine & cluster headache advocates and patients to present our requests or “asks” of Congress. These asks are typically focused on improving awareness about the impact of headache disorders and the need for research funding.
The 50-State Network (Global Healthy Living Foundation)
This is a grassroots advocacy organization that is made up of patients like you. They work to share patient perspective, which is crucial in the State and Federal health and policy and regulatory arenas. Their focus is on repurposing the energy of frustration, despair, and helplessness into positive mobilization, action, and fair representation to benefit all.
Headache & Migraine Disease Working Group
The Alliance for Patient Access, a national network of healthcare providers working to ensure that patients have access to approved therapies and appropriate care, recently launched the Headache & Migraine Disease Working Group. This new working group brings together a unique network of clinicians interested in public policy as it relates to access to therapies used to treat headache and migraine disease. It works to ensure that clinician and patient voices are heard by policymakers by explaining how access barriers impact patient care. Working group members may be asked to provide comments or testimony on legislative or policy matters at both the state and federal levels, collaborate on drafting white papers, infographics and other educational materials, or engage with the media.
If you are a healthcare provider and would like to learn more or become a member of AfPA’s Headache & Migraine Working Group, please contact Josie Peterson at email@example.com.