Agenda

Retreat Migraine Agenda

Empowering Your Patient Voice

September 21 • 12pm – 4pm ET • Virtual

Register Today

Sept. 21 Opening

12PM - 1PM

Introduction

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Speakers:

  • Susan Doughty, Executive Director, CHAMP
  • Dr. William Young, Board President, CHAMP

Community Engagement Panel

This panel will highlight firsthand experiences, underline the obstacles encountered in accessing care, and explore the impact of these challenges on their lives. This is a unique opportunity to hear directly from those whose lives are affected, learn how we can all contribute to a more patient-centered healthcare system, and empower patient voices to advocate for meaningful changes in healthcare.

Panelists:

  • CMA (Cat)

  • Anna Williams

  • Qasim Amin

  • Caroline Brooks Stories

Session 1

1PM - 1:50PM
Attend one session. Sessions are recorded if you'd like to view other sessions at a later time.

Medical Gaslighting

This session will address the issue of medical gaslighting, particularly as it affects women navigating menopause. The discussion will illuminate the struggles women face in having their headache and migraine symptoms and concerns taken seriously. Participants will have the opportunity to connect with existing support groups, and analyze the topic through an advocate’s lens.

Presented by: U.S. Pain Foundation and MigraineNation

The Treatment Continuum: How, and When, to Educate to Your HCP

Navigating the complexities of treatment options can be challenging. This session will explore effective strategies for patients to communicate with their healthcare providers about adjusting treatment plans, ensuring treatments align with evolving health needs. Learn when and how to initiate conversations about switching medications, and how to advocate for a “medical toolbox” approach that considers a range of treatment options.

Presented by: Association of Migriane Disorders and Migraine Meanderings

Owning Your Story: How to Create an Elevator Pitch

Effectively communicating about your health, especially when dealing with complex conditions like headache and migraine, is crucial in both personal and medical settings. This session will guide you in developing a concise and compelling message that effectively conveys your experience. Learn to better articulate the key points of your health journey and the impact it has on your life, enabling better understanding and support from healthcare providers, family, and friends. This discussion will provide tips and strategies to help you own your story, ensuring you are prepared to advocate for yourself in any setting.

Presented by: Miles for Migraine and Clusterbusters

Session 2

1PM - 1:50PM
Attend one session. Sessions are recorded if you'd like to view other sessions at a later time.

Medical Gaslighting

This session will address the issue of medical gaslighting, particularly as it affects women navigating menopause. The discussion will illuminate the struggles women face in having their headache and migraine symptoms and concerns taken seriously. Participants will have the opportunity to connect with existing support groups, and analyze the topic through an advocate’s lens.

Presented by: U.S. Pain Foundation and MigraineNation

The Treatment Continuum: How, and When, to Educate to Your HCP

Navigating the complexities of treatment options can be challenging. This session will explore effective strategies for patients to communicate with their healthcare providers about adjusting treatment plans, ensuring treatments align with evolving health needs. Learn when and how to initiate conversations about switching medications, and how to advocate for a “medical toolbox” approach that considers a range of treatment options.

Presented by: Association of Migriane Disorders and Migraine Meanderings

Owning Your Story: How to Create an Elevator Pitch

Effectively communicating about your health, especially when dealing with complex conditions like headache and migraine, is crucial in both personal and medical settings. This session will guide you in developing a concise and compelling message that effectively conveys your experience. Learn to better articulate the key points of your health journey and the impact it has on your life, enabling better understanding and support from healthcare providers, family, and friends. This discussion will provide tips and strategies to help you own your story, ensuring you are prepared to advocate for yourself in any setting.

Presented by: Miles for Migraine and Clusterbusters

Closing

3PM - 4PM

Medical Gaslighting

This session will address the issue of medical gaslighting, particularly as it affects women navigating menopause. The discussion will illuminate the struggles women face in having their headache and migraine symptoms and concerns taken seriously. Participants will have the opportunity to connect with existing support groups, and analyze the topic through an advocate’s lens.

Presented by: U.S. Pain Foundation and MigraineNation

The Treatment Continuum: How, and When, to Educate to Your HCP

Navigating the complexities of treatment options can be challenging. This session will explore effective strategies for patients to communicate with their healthcare providers about adjusting treatment plans, ensuring treatments align with evolving health needs. Learn when and how to initiate conversations about switching medications, and how to advocate for a “medical toolbox” approach that considers a range of treatment options.

Presented by: Association of Migriane Disorders and Migraine Meanderings

Owning Your Story: How to Create an Elevator Pitch

Effectively communicating about your health, especially when dealing with complex conditions like headache and migraine, is crucial in both personal and medical settings. This session will guide you in developing a concise and compelling message that effectively conveys your experience. Learn to better articulate the key points of your health journey and the impact it has on your life, enabling better understanding and support from healthcare providers, family, and friends. This discussion will provide tips and strategies to help you own your story, ensuring you are prepared to advocate for yourself in any setting.

Presented by: Miles for Migraine and Clusterbusters