Supplemental Tables

For CHAMP Headache Disease Patient Access Survey Briefs

These tables are supplemental materials linked from Briefs 1 and 2.

Table S.1.1. Relative Frequency of Daily Headache, Total and by Headache Type Diagnosis

Headache type diagnosis Number with diagnosis Number with daily headache Percent with daily headache
All headache type diagnoses 1,924 667 34.7
Specific headache type diagnosis
Migraine, any type 1,670 576 34.5
Tension-type headache 577 195 33.8
Cluster headache 438 145 33.1
New daily persistent headache 453 250 55.2
Post-traumatic headache 250 98 47.8
Other headache type 423 203 48.0

Note: Respondents could check all that apply. Sum of headache subtypes will sum to greater than the totals and 100%. Daily headache is defined as 25 days or more, on average, over past 3 months.

Table S.2.1. Other Reported Reasons for Waiting to Seek Help from a Healthcare Professional for Headache(s), Among Those With a Migraine Diagnosis Who Waited 1 Month or More

Reason for waiting Number Percent of total responses
Other write-in, total 612 42.9
Too young, all responses 296 20.8
Too young to make own appointment decisions 198 13.9
Not believed or perceived malingering due to (young) age 98 6.9
Thought symptoms were normal, something else, or should just manage 156 10.9
Thought it was sinus or allergy, specifically 36 2.5
Symptoms were initially infrequent and/or self-treated with OTC treatments 99 6.9
Didn’t know HCP could treat symptoms or that there was treatment 38 2.7
Not believed or perceived malingering (age unspecified) 35 2.5
Misdiagnosed by HCP 32 2.2
Other family members had same symptoms 27 1.9
Other health issues delayed treatment 22 1.5
Didn’t want to see HCP or use medications 17 1.2
Other responsibilities delayed treatment 11 0.8

Note: Percentages are calculated based on the total number of responses to this question (n = 1,426). Of those, 612 provided an “other” response; a portion were coded and are reported here. Respondents may appear in multiple rows. Totals will sum to more than 612 and 100%. Respondents were considered to have “waited” if they reported 1 month or more between experiencing symptoms and seeking help from a healthcare professional (HCP). OTC = over-the-counter.

Table S.3.1. Other Barriers Encountered Accessing a HCP to Treat Headaches, Among Those With a Migraine Diagnosis

Barrier Number Percent of total responses
Other write-in, total
 170 10.3
Stigma, various 25 1.5
Other insurance issues 12 0.7
Exhausted all treatment options 10 0.6
Taking time for appointment 9 0.5
HCP turnover 8 0.5
Finding a HCP who will prescribe specific treatments 6 0.4
Unaware of headache specialist option 6 0.4

Note: Percentages are calculated based on the total number of responses to this question (n = 1,645). Of those, 170 provided an “other” response which were coded into like categories and reported here. Respondents may appear in multiple rows. During coding, analysts realized that approximately 14% of survey takers read this question to represent barriers accessing a a headache specialist, not any healthcare professional. This was likely due to the order of the survey questions. HCP = healthcare professional.