Supplemental Tables

For CHAMP Headache Disease Patient Access Survey Briefs

These tables are supplemental materials linked from Briefs 1 and 2.

Table S.1.1. Relative Frequency of Daily Headache, Total and by Headache Type Diagnosis

Headache type diagnosisNumber with diagnosisNumber with daily headachePercent with daily headache
All headache type diagnoses1,92466734.7
Specific headache type diagnosis
Migraine, any type1,67057634.5
Tension-type headache57719533.8
Cluster headache43814533.1
New daily persistent headache45325055.2
Post-traumatic headache2509847.8
Other headache type42320348.0

Note: Respondents could check all that apply. Sum of headache subtypes will sum to greater than the totals and 100%. Daily headache is defined as 25 days or more, on average, over past 3 months.

Table S.2.1. Other Reported Reasons for Waiting to Seek Help from a Healthcare Professional for Headache(s), Among Those With a Migraine Diagnosis Who Waited 1 Month or More

Reason for waitingNumberPercent of total responses
Other write-in, total61242.9
Too young, all responses29620.8
Too young to make own appointment decisions19813.9
Not believed or perceived malingering due to (young) age986.9
Thought symptoms were normal, something else, or should just manage15610.9
Thought it was sinus or allergy, specifically362.5
Symptoms were initially infrequent and/or self-treated with OTC treatments996.9
Didn’t know HCP could treat symptoms or that there was treatment382.7
Not believed or perceived malingering (age unspecified)352.5
Misdiagnosed by HCP322.2
Other family members had same symptoms271.9
Other health issues delayed treatment221.5
Didn’t want to see HCP or use medications171.2
Other responsibilities delayed treatment110.8

Note: Percentages are calculated based on the total number of responses to this question (n = 1,426). Of those, 612 provided an “other” response; a portion were coded and are reported here. Respondents may appear in multiple rows. Totals will sum to more than 612 and 100%. Respondents were considered to have “waited” if they reported 1 month or more between experiencing symptoms and seeking help from a healthcare professional (HCP). OTC = over-the-counter.

Table S.3.1. Other Barriers Encountered Accessing a HCP to Treat Headaches, Among Those With a Migraine Diagnosis

BarrierNumberPercent of total responses
Other write-in, total
17010.3
Stigma, various251.5
Other insurance issues120.7
Exhausted all treatment options100.6
Taking time for appointment90.5
HCP turnover80.5
Finding a HCP who will prescribe specific treatments60.4
Unaware of headache specialist option60.4

Note: Percentages are calculated based on the total number of responses to this question (n = 1,645). Of those, 170 provided an “other” response which were coded into like categories and reported here. Respondents may appear in multiple rows. During coding, analysts realized that approximately 14% of survey takers read this question to represent barriers accessing a a headache specialist, not any healthcare professional. This was likely due to the order of the survey questions. HCP = healthcare professional.